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Post by dfunked on Aug 2, 2022 12:21:42 GMT
Aye, best of luck.
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Deleted
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Post by Deleted on Aug 2, 2022 12:21:55 GMT
Well, blood taken and tubes of cack posted. Just gotta wait for the initial results to see how concerned I should be now. Went through similar last year. Shit and blood samples, scans, the works. It's stressful but try not to focus on it. Nothing more to do now until you hear back. It will be all good man. Sending you positive vibes.
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Deleted
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Post by Deleted on Aug 2, 2022 12:22:47 GMT
Bloody hell JonFE, I meant to ask how the op went. Making a good recovery? Don't want to derail this thread but my hols fucked up my continuity and by the time I came back it completely escaped me to find out how you got on.
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Post by simple on Aug 2, 2022 16:31:38 GMT
Thanks everyone. Just keeping myself distracted til I hear back, maybe I’ll even get time to play some actual computer games.
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Post by Sarfrin on Aug 3, 2022 11:04:38 GMT
Fingers crossed for you
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Post by Jambowayoh on Aug 5, 2022 12:13:46 GMT
At the hospital for my last ever blood test, feels really weird that 5 years has passed so quickly. It's also intensely depressing how busy it is here too.
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dogbot
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Post by dogbot on Aug 5, 2022 12:15:30 GMT
Everything crossed for you that it's the right result, buddy.
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Post by simple on Aug 5, 2022 12:26:45 GMT
Best of luck man
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Post by Deleted on Aug 5, 2022 12:33:10 GMT
Yeah, all the best with that Jambo.
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Post by drhickman1983 on Aug 5, 2022 12:33:17 GMT
All the best
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Post by Jambowayoh on Aug 5, 2022 12:33:54 GMT
No it's fine, I'm way past the minimum survivability timeline as it were, I just have to do this test and a phonecall with the oncology department at the end of the month because my case is not of a high importance anymore. After that I'm free as it were, my irrational brain being ultra vigilant about ever getting Cancer again is for life however.
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Post by quadfather on Aug 5, 2022 14:05:02 GMT
My sister goes to breast cancer groups where they discuss exactly what you're describing. She was saying that some of the women are absolutely distraught about it, and some deliberately do not have the reconstruction surgery because they like to be reminded that they got through it. I'm sure it takes all sorts of ways to progress. Are there similar groups for the cancer you had?
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Deleted
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Post by Deleted on Aug 5, 2022 14:19:59 GMT
I have a cancer question and I’m not sure it’s something that can be answered but it’s on my mind.
If surgery isn’t an option and neither is radiotherapy, would an intense chemo course potentially destroy a tumour? Or are we looking at something that will only postpone the inevitable?
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Post by drhcnip on Aug 5, 2022 16:59:48 GMT
the difficulty you have is that it would depend on the type of cancer & the staging/grading etc...also, whether it's primary or metastatic
for example, my wife's was 100% chromophobic renal cancer - it doesn't respond to chemo in that way, so her chemo had to be daily through tablet form, but was still experimental as it's such a rare type and very little is known about it still
if you have more info, it may be easier to make a judgement - happy to do so via pm if you dont want it made public if that helps
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Post by drhcnip on Aug 5, 2022 17:01:00 GMT
No it's fine, I'm way past the minimum survivability timeline as it were, I just have to do this test and a phonecall with the oncology department at the end of the month because my case is not of a high importance anymore. After that I'm free as it were, my irrational brain being ultra vigilant about ever getting Cancer again is for life however. sounding positive, my friend - my fingers, toes, and wizened curly bits are all crossed for your future
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Post by Jambowayoh on Aug 5, 2022 17:05:36 GMT
Cheers collective brain trust
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Deleted
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Post by Deleted on Aug 5, 2022 18:37:49 GMT
the difficulty you have is that it would depend on the type of cancer & the staging/grading etc...also, whether it's primary or metastatic for example, my wife's was 100% chromophobic renal cancer - it doesn't respond to chemo in that way, so her chemo had to be daily through tablet form, but was still experimental as it's such a rare type and very little is known about it still if you have more info, it may be easier to make a judgement - happy to do so via pm if you dont want it made public if that helps I’m not entirely sure tbh. Basically my boss of 15 years, who I basically work beside and get on very well with, has just found out today that the cancer in his kidney is inoperable. It was a difficult conversation with him so I’m not entirely sure as to grading etc. from what he tells me if he does nothing then he could have 6 months to a year but they are going to option aggressive chemo to shrink it down.
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Post by drhcnip on Aug 5, 2022 19:26:56 GMT
kidney cancer is a tricky fucker
first step would be a partial or full nephrectomy, regardless of type - if the inference is that surgery isn't an option, that would tell me it's already metastatic...wife had a full nephrectomy when the tumour of approx 18x8 was discovered - at that point there were no noticeabe metastases but the lymph nodes were involved..basically, once it gets into the lymphatic system from the kidneys, it tends to travel to the liver (which is what finished her off, lungs etc, organs like that...
if they're thinking aggressive chemo, it's more likely to be one of the more aggressive renal cancers (there are some nasty fuckers that work really quickly - the one advantage of chromophobe is that it's an indolent cancer, so grows more slowly - one issue with that is that we were never given a prognosis as they had no idea what they were working with)
basically, if a renal cancer takes hold and becomes metastatic, it is basically just a matter of time, e.g. reducing the tumour to alleviate the burden on the renal/other involved organ function and, if one of the more aggressive, 6-12 mths sounds like an average prognosis, i'm sorry to say
nasty, horrible, fucker of a disease and i'm sorry to hear that news - hope the above makes an iota of sense
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Post by Jambowayoh on Aug 5, 2022 20:10:10 GMT
My sister goes to breast cancer groups where they discuss exactly what you're describing. She was saying that some of the women are absolutely distraught about it, and some deliberately do not have the reconstruction surgery because they like to be reminded that they got through it. I'm sure it takes all sorts of ways to progress. Are there similar groups for the cancer you had? I'm not really sure I wasn't offered any support groups I had to go get therapy on my own as I got lost in the system and I got two sessions before I left to go to Andorra and they were like oh, yeah, we think you have depression. That was a crazy time.
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Deleted
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Post by Deleted on Aug 5, 2022 20:12:32 GMT
Shit I’m not sure why I typed kidney. It’s liver sorry.
I’m going to speak to him more about it but he was still taking it in as well.
Thing is that he had prostate cancer 10 years ago which was operated on then back in 2019 he had cancer again and had radio, chemo then an op. This is now the first time that they’ve ruled out an op and I think he feels he’s finally losing to it. It’s shit and there’s nothing I can say or do.
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Post by Jambowayoh on Aug 5, 2022 20:20:45 GMT
Fuck cancer.
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Ulythium
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Post by Ulythium on Aug 5, 2022 20:25:44 GMT
Sorry to hear that, Wunty - all the best to you and your boss. Jambo, very glad you're doing so well - long may it last. Man, this thread's a real roller coaster sometimes (and I'm not even saying that as a joke - you can, and do, get good news and bad news on the exact same page. The nature of the beast, I suppose.)
EDIT: And yeah, fuck cancer.
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Post by Sarfrin on Aug 5, 2022 23:54:07 GMT
Shit I’m not sure why I typed kidney. It’s liver sorry. I’m going to speak to him more about it but he was still taking it in as well. Thing is that he had prostate cancer 10 years ago which was operated on then back in 2019 he had cancer again and had radio, chemo then an op. This is now the first time that they’ve ruled out an op and I think he feels he’s finally losing to it. It’s shit and there’s nothing I can say or do. There probably isn't anything you can do but continue to be his friend. My only experience of this stuff is when my dad died young and everything was awkward and none of us knew what to say but I was just grateful that people took the time to show up and talk to us to be honest. It showed that they cared.
ETA What I mean is that it doesn't matter what you say, it just matters that you say something.
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Post by drhcnip on Aug 6, 2022 6:47:45 GMT
Shit I’m not sure why I typed kidney. It’s liver sorry. I’m going to speak to him more about it but he was still taking it in as well. Thing is that he had prostate cancer 10 years ago which was operated on then back in 2019 he had cancer again and had radio, chemo then an op. This is now the first time that they’ve ruled out an op and I think he feels he’s finally losing to it. It’s shit and there’s nothing I can say or do. not a massive amount of difference, i suppose obviously, there's the added difficulty of it being a single organ that you're reliant on...surgery can be possible with the liver but only if the tumour is primary and small or localised - they can remove sections or ablate them if caught early enough...sounds like this is too advanced to do that (my wife's liver was metastatic, two main tumours which may have been ablatable but then she had a myriad of tiny/smaller dots of cancer which made any surgical approach unmanageable even by the top hospital) - in this case, it does become a case of reducing the tumour burden on the affected organ rather thananything else whichever way, it's a kicker and all i can do is echo the above - be there for them as much as you can, listen if they need you and just let them know you're there...it does mean an awful lot
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Post by Deleted on Aug 6, 2022 9:01:30 GMT
Thanks guys. Yeah I’m basically just making sure he knows I’m there for him. He’s done a lot for me over the years. I’m still convinced he’ll beat this but deep down I just don’t know. He’s always seemed indestructible.
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dogbot
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Post by dogbot on Aug 12, 2022 6:33:59 GMT
Mrs dogbot got a text this morning to say her pops is unresponsive. They took him into hospital last night and he's been resuscitated but his organs are in shutdown now and it's just a matter of time.
Fuck. Cancer.
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dogbot
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Post by dogbot on Aug 12, 2022 6:37:34 GMT
And as I was typing that, he's gone.
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Post by drhickman1983 on Aug 12, 2022 6:42:33 GMT
That's awful to hear Dogbot. Condolences to you all.
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Post by Dougs on Aug 12, 2022 7:00:44 GMT
Sorry to hear that. Glad she got to spend some time with him.
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Post by Deleted on Aug 12, 2022 7:20:45 GMT
Ah man, I’m so sorry. My sincerest sympathies to you all.
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